The FCS Foundation has rebranded to The Foundation for Triglyceride Disorders, reflecting the organisation’s expanded commitment to supporting individuals and families affected by the full spectrum of triglyceride-related conditions.
Building upon years of leadership, advocacy, education, and patient support in familial chylomicronemia syndrome (FCS), the newly renamed foundation will broaden its focus to include additional triglyceride disorders, including multifactorial chylomicronemia syndrome (MCS), severe hypertriglyceridemia (sHTG), and triglyceride-induced pancreatitis.
The rebrand represents an evolution for the organisation as it continues to address the growing need for awareness, education, and community support across triglyceride disorders – many of which remain under recognised and misunderstood.
“This next chapter reflects both the growth of our community and the unmet needs that continue to exist across triglyceride disorders,” said Lindsey Sutton, co-founder.
“While our name is evolving, our mission remains deeply rooted in supporting patients and caregivers through trusted education, meaningful connection, and advocacy.”
The Foundation for Triglyceride Disorders will continue to serve as a patient-centred, science-driven organisation dedicated to improving understanding and outcomes for those impacted by triglyceride disorders. Through expanded educational initiatives, community engagement, and strategic partnerships, the Foundation aims to create a more connected and informed community for patients, caregivers, clinicians, and advocates.
As part of the rebrand, the Foundation will continue to expand and strengthen several core initiatives, including: community connections — a recurring peer-support and discussion series for patients and caregivers; an annual patient summit, the foundation’s flagship educational and community event; Voices of Triglycerides, a storytelling initiative elevating patient and caregiver experiences; and a resource and navigation hub — accessible tools and educational resources designed to support patients throughout their journey.
The foundation’s expanded vision is grounded in four strategic priorities: education, connection, awareness, and support.
“Our goal is simple: no patient or family navigating a triglyceride disorder should feel alone,” said Melissa Goetz, co-founder.
“We are proud to evolve into an organization that can serve and support a broader community while maintaining the same compassion, credibility, and patient-first commitment that has always defined our work.”